Long Island Family Fights To Raise Awarness About Tuberous Sclerosis
WANTAGH, N.Y. (CBSNewYork) — A Long Island family is seeking to raise awareness about a very rare disease.
As WCBS 880’s Sophia Hall reported, Zoey Seiling is as cute as a button, with a laugh and smile that can brighten a room. But Zoey has never spoken a word, and she has been hospitalized over 20 times.
Zoey’s mother, Renee Seiling said her daughter was diagnosed with tuberous sclerosis just after she was born.
“It’s a genetic disorder that causes non-malignant tumors,” Renee Seiling said. “Zoey has them on her brain and her heart.”
Renee Seiling said her daughter is severely affected.
“She has seizures and rapid heart, and she is non-verbal, so she uses pictures to communicate her wants and her needs,” Seiling said.
Every year, the family has a walk in Wantagh, Long Island, in September. All the money goes toward helping find a cure.
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