LI Community 'Rocks The Socks' For Baby Born With Rare Skin DiseaseOne Long Island family is using social media to raise awareness for epidermolysis bullosa, a rare skin disease that affects young children.
Scientists Strive To Create New Skin For Children Suffering From Genetic Defect That Causes Painful Blistering And PeelingEight-year-old Jackson Silver was born with epidermolysis bullosa, or EB for short. His hands, body and esophagus are covered in blisters.
Golf, Tennis Tourney Returns To Help Battle Against Rare Skin DiseaseRafi Kopelan spends every day getting bandaged up from head to toe. That’s because the 3-year-old suffers from epidermolysis bullosa, a rare genetic skin disease that causes the skin to be so fragile that the slightest friction can cause severe bleeding.